Posts

CanCare 10-13

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Kathy is still walking about 6-7 miles per day.  Still in Good Spirits and seen no cognitive decline.  Possibly improvement. Kathy is working to change the attitude of the Facebook support group.   The last post was by someone who had some special cure by some seeds and "Contact me if you need more information"   Hawking snake oil to those desperately seeking a cure is not got that person drummed out of the group.   Care Giver role Today -  Create a normal stress free space.
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OLIdate 9/22/2018

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Made a lap around the dam.   First time since getting the diagnosis.   It is just under 3 miles.  
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OLIDate 8/31/2018

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Woke up with 9-10 headache around 5 am took ibuprofen Left Leg started shaking - asked to take to clinic 911 call transport to Scott and White Brenham CT Scan - 2 brain things to look at Call with Memorial Herman - Memorial Herman wanted to go to Med Center 9 am Transport to MH Med Center for MRI 4 PM Receive MRI 9 PM arrive Home Saturday noon began taking Steroid 3 per day Released around 8 pm 9 PM Arrive home Saturday Noon began taking Steroid 3 per day Slight headache Saturday Morning 1 Gram Acetaminophen
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OLIdate 9/17/2018

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Obtained a copy of the pathology report.  This is the best break down of the words I don't know what they mean, but they are important
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OLIdate 9/21/2018

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Meeting with MD Anderson Neuro Oncologist. We like her.  She specializes in Glioma Another baseline Neuro Evaluation. Plan set to Radiation then Chemo.   Learned that Chemo could be one of two based on the 1p and 19q co-deletion. Back to Memorial Herman to see where we were on 1P - 19Q status.  Results are back, not signed by Doctor for release.  Have a Dr. Day person chasing. Things we updated from Memorial Herman When we were told "We can get your left vision back.   That is not from repairing the brain.   That would be from putting prisms in the glasses. Next up is meeting with MD Anderson Radiation Oncologist. Late call from Memorial Herman to Schedule an MRI.   This was new. From last meeting with Memorial Herman was that we would meet with Radiation Neuro Oncologist.   That meeting was not set up as far as we know. Kathy called Dr. Zhu's office.   Said he ordered it.  Seems another MRI is excessi...
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